Welcome to my blog, my little place on the big internet.
I am Iris, I am 23 and I live in the Netherlands. I believe in God and I believe in Jesus but religion is not 100% my thing. I study Applied Physics and I am currently doing my final master’s research.
I love taking pictures and I have my own small photography business. Sometimes I write short stories and poems and I am also learning to play the guitar. I am always singing (even in my sleep sometimes) and being quiet is something I’m not good at.
I have a few illnesses and am disabled. You can read more about my health on my diagnosis page.
So yeah, I try to blog about my life but it's mostly about my illnesses because I am an ill and that makes up most of my life.
**What you are viewing now, is my life, in its purest form. You may not understand the rambling of my mind in the form of a few words or a picture, but that is okay because I do. **
Creativity is the air that I breathe; it's in the words that I say, the moves that I make, the songs that I sing. Please accept me for that, because I have.
I hope you like what you are about to see.
Ah thank you:) My day was pretty cool. I edited pictures, went to a birthday and had a barbecue with my neighbours. Now I am ending the day with some tumblr:)
I’m so glad to see the younger generation waking up to this hypocrisy.
The homeowner at 22 one is killing me.
This meme makes me so angry because it’s so on-target.
I am screaming
this isn’t even funny to me it just makes me want to find the nearest baby boomer and deck them in the mouth
I reblog this every time because it always re-ignites my anger.
I feel you sphynx-prince.
My entire life consists only of being in pain, not having energy, taking pills, sleeping, and trying to sleep.
My hips are having an identity crisis.
I was tagged by: i-am-lost-in-the-tide
Nickname: Muts, Kleintje (basically anything that mentions my height)
Birthday: November 14
Time Zone: GMT+1
What time and date is it there: 8/30/2014 - 14:08pm
Average hours of sleep I get each night: Between 8 and 9
Last thing I googled: ”3FM frequency”
Most used phrase(s): I can put some Dutch sentences here but you probably wouldn’t understand them so yeah. But I say ‘moeilijk leuk’ a lot. So…
First word that comes to mind: Stroopwafel
Last thing I said to a family member: Ja lekker
One place that makes me happy and why: Taizé, because it always gives me so much energy to be there.
Favorite beverages: Tea and more tea, hot chocolate millk, ginger beer
Last movie I watched in the cinema: The grand budapest hotel (not sure though)
Three things I can’t live without: My laptop, Mattijs, medication (:p)
Something I plan on learning: As much as I can? But right now I am doing Scanning Tunneling Microscopy.
A piece of advice for all my followers: You are awesome and don’t let anyone tell you any different. Breathe. It will be okay.
You all have to listen to this song: Everything from Sam Smith.
Haha my body is laughing at me. Fine. I’ll laugh right back.
heartfilledminds have they never tried Liquid Stitches and butterfly plasters for your skin issues? That’s the best for most EDSers if you’re not allergic and the wound isn’t too wide.agirlcalledcaptain I have the scarring too and it sucks! I have to get stitches again next week and I’m already dreading it as they rip right trough my skin…
I wish I could get better pictures and my house didn’t have fifties lighting but basically I don’t have stretchy skin, it just rips open really easy and scars badly. My thyroid scar is huge and raised and rips open all the time and the arm scars are just from brushing against hard surface edges. They’re all raised and feel papery.
But on the plus side my skin is super soft and I’ve never had acne problems. Plus my mom, who passed down the EDS, still doesn’t really have wrinkles and has been mistaken for my sister.
Well they didn’t know I had EDS the previous times so no, but I will try that the next time I’m in the hospital. This is not going to be a big wound so I didn’t want to have to go to a dermatologist. Especially since I need this thing removed asap.
So in other news I have been able to do so much more since taking my iron supplements, so I was probably anemic.
I studied for two hours today and managed to go to the pharmacy and to the hospital to ask for my neck MRI. dailylifewithchronicillness, once I have it I’ll send it to you as well.
I also went to the Primark today and bought some shoes that look way Joe more grown up than my old vans. Plus, I’ll be in a wheelchair so who cares.
Met up with friends and now I’m going to crash.
My wheelchair is going to be here by next week aaaaaaaaahhhhh